Mollie McKool with Jack and Ellie

Myotonic Dystrophy Anesthesia Guidelines

Share the DM Anesthesia Guidelines with your Doctor! Individuals living with myotonic dystrophy can have severe reactions to anesthesia and should be monitored carefully whenever anesthesia is administered. Download the one page Anesthesia Quick Reference Guide!

Download DM-Specific Resources

Explore MDF's resources for people living with DM and others involved in their care, safety, and happiness. View all our DM Toolkits & Publications!

Myotonic Dystrophy News

January 22,2025

Happy New Year from MDF's Chief Executive Officer!

As we welcome 2025, MDF is filled with hope and excitement for the year ahead! From launching new support programs and resources to hosting the International MDF Conference this May, we're making strides to advance care, connection, and hope for the DM community. Read a special message from our CEO, Dr. Tanya Stevenson!

January 22,2025

Join the Fight for DM Research Funding: Become an MDF State Advocacy Captain

Join MDF for a Advocacy webinar on February 11th at 4pm Pacific to learn how you can help increase research funding for myotonic dystrophy and become a US State Advocacy Captain.

January 22,2025

MDF Board of Directors Approves Over $1 Million in Myotonic Dystrophy Research Funding

We are thrilled to share that the MDF's Board of Directors recently approved an additional $805,000 in funding towards 2025 myotonic dystrophy research grants and fellowships, bringing MDF's total approved research funding in 2024 to over $1 million!

January 22,2025

Research Pilot Grant Feature: Belinda Pinto, PhD

Dr. Pinto has dedicated the past nine years to addressing an often-overlooked symptom of DM1—excessive daytime sleepiness (hypersomnia). Currently working in Dr. Eric Wang’s lab at the University of Florida’s Department of Molecular Genetics and Microbiology and the Center for Neurogenetics, Dr. Pinto is committed to advancing our understanding of the molecular mechanisms behind hypersomnia in DM1 and leading efforts to develop future treatments.

January 22,2025

Research Pilot Grant Feature: Emma Matthews, FRCP

As part of her Pilot Grant, Dr. Emma Matthews, a Neurologist and Reader at St George's, University of London, is leading a groundbreaking project to uncover why myotonic dystrophy type 1 (DM1) patients are prone to abnormal lipid levels, known as dyslipidemia. This research could inform the development of new therapies not only for DM1 patients but potentially for the broader population.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.

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