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Digital Academy

This webinar is essential for meeting attendees and will cover everything you need to know to make an impact on the FDA.

Patient Focused Drug Development (PFDD) meeting: This year at our annual conference MDF will host the first community meeting focused on the Food and Drug Administration (FDA). MDF community members will educate the FDA and other federal agency representatives about symptoms and disease issues that are most important to patients and families, and guide their thinking on DM drug review. The FDA wants to understand which benefits patients seek from therapies and what risks they might be willing to accept to gain specific benefits.

Watch this webinar for tips and guidance on how to be a successful advocate for myotonic dystrophy Care and a Cure on Capital Hill during our 2016 Hill Day Friday, September 16, 2016. Additional training will also be provided starting at 8:30 AM at the 2016 MDF Annual Conference hotel before we board the buses to start Hill Day. Questions? Contact MDF via email or phone: 415-800-7777. 

Mid-Year Legislative Webinar that includes an update on DM research funding requests to the NIH & DoD research programs, information on what Congress is likely to do next, and facts to help you advocate for DM funding.

In celebration of National Family Caregivers Month (November 2015), the Myotonic Dystrophy Foundation hosted a session on the benefits of having a meditation practice. The webinar was hosted by Dr. Genie Palmer, a former associate professor and researcher at Sofia University.

Community members discuss daily living strategies for motivating their adult children living with juvenile-onset DM1.

Please note: This is an audio recording only. To view the accompanying presentation, please click here.


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