Barry Wald hails from Portland, Oregon, and was Vice-Chairman of the MDF Board from 2006-2009. Along with a group of close friends he has organized and participated in three Run America relays – elite, long-distance running/cycling events – to raise awareness and $250,000 in research funding for myotonic dystrophy. Since his graduation from Harvard and Carnegie Mellon graduate school, his business career has spanned 25 years in the computer industry – the last 18 years spent at Intel – until he retired under the company’s disability program in 2007. He has the classical form of adult-onset myotonic dystrophy. Barry participated in the NIH-funded clinical trial for Somatakine at the University of Rochester during 2006. He and his wife, Ruthie, pioneered the use of prenatal screening for myotonic dystrophy and succeeded in having two non-affected daughters. In attendance at the IDMC-5 in Quebec, he is a founding member of the MDF. He has particular expertise in myotonic dystrophy research funding, genetic testing, and disability insurance programs.
Índice de contenidos
