Julie LeBoeuf is a mother, wife, and caregiver living in a rural community in Northern Ontario, Canada, where she works as a special education consultant. Her connection to myotonic dystrophy is deeply personal. Her husband lives with adult-onset myotonic dystrophy type 1 (DM1), and two of their three children live with juvenile-onset DM1 (JOA).
Since 2022, Julie has served as a Co-Facilitator for both the Canadian and the International French-speaking MDF Support Groups, fostering connections, sharing knowledge, and offering hope to individuals and families affected by DM.
As an awareness ambassador, Julie shares her story to shed light on the challenges faced by individuals and families living with DM, while holding onto hope that life-changing treatments are on the horizon. She also raises the urgent need for change to ensure future treatments are accessible, affordable, and recognized as true investments in the lives of families affected by DM.
Through storytelling and advocacy, Julie is committed to creating lasting change, helping ensure no family faces this journey alone and that hope remains.
