Dr. Sofia Olmos joined MDF in January 2023 as the Myotonic Dystrophy Family Registry Coordinator. Sofia is passionate about patient advocacy, research and education and brings with her over fifteen years of experience in academia and the nonprofit sector. After completing her Ph.D. in Immunology back in Argentina, she moved to the U.S. to further her scientific training as a postdoctoral fellow working at Albany Medical College, Albany, NY, and New York University, New York, NY respectively. Always interested in having a more direct involvement in patient care communities and translating medical knowledge and research findings into population health improvement, Sofia switched out the laboratory for the nonprofit world. Her experience as a patient advocate at the Leukemia and Lymphoma Society (LLS) reinforced her interest in pursuing a career in a community-based organization and being part of a team with the common goal of helping people.
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