Mindy Kim is the Support Group Co-Facilitator for the Southeast Regional Support Group, our Supportive Facebook Chats for Adults, and the weekly DM Virtual Happy Hour. Mindy began dancing at 3 years old in her hometown of Redlands, California. She immediately loved the art of and has been dancing ever since. While running her successful dance company in Texas in 2010 she was diagnosed with Myotonic Dystrophy. Mindy took it upon herself to find a new way to dance, it was then she began Chair Tap. Mindy now lives in Greensboro, NC where she facilitates a local support group and the Facebook messenger support group. Since her diagnosis she has found her “Mother Ship” in MDF’s annual conference. Today she teaches “Chair One Fitness,» Chair tap when she can and is a constant DM Warrior advocate. The people in this community have become her second family and she would not be the optimist she is without their continued support. Her personal goal for the DM community is to get everyone to the conference at least once to meet their extended “family.”
Mindy Kim officially joined the MDF team as Registry Outreach Specialist in March 2023. Since her diagnosis of DM1 in 2010 she has become an active community member and advocate. In her spare time she proudly serves as a volunteer to facilitate the MDF Support Group for North & South Carolina, while also leading the Supportive Facebook Chat for Adults, as well as Friday Night DM Happy Hour. In her new role as Outreach Specialist for the Myotonic Dystrophy Family Registry (MDFR), she is working hard to update and expand the registry. You might be fortunate to receive a phone call from Mindy about updating your registry profile. As research and trials in DM are advancing quickly, she wants to ensure your profile is up to date so you don’t miss any opportunities to participate in helping change the future of myotonic dystrophy!
