Join us for our upcoming Ask-the-Expert webinar "Pediatric Endocrinology & DM: Growth, Hormones, and Metabolic Health." This webinar will feature Nadia Merchant, MD, a Pediatric Endocrinologist and Geneticist at Children’s Health in Dallas, Texas. Dr. Merchant is also an Assistant Professor of Pediatrics at UT Southwestern.
Related Content
Join us for our upcoming Ask-the-Expert webinar "Mental Health & DM: Navigating Disease Progression, Emotional Well-Being, and Access to Treatment." This webinar will feature Missy Dixon, PhD, a Licensed Psychologist and Assistant Professor of Pediatrics at the University of Utah.
Join us for a virtual meeting of the Canada Myotonic Dystrophy Support Group!
Join us for our Virtual South East Regional Support Group Meeting!
Join us Every Quarter
2:00 - 3:00 PM Eastern Time
Join us for for the Michigan Regional Support Group on the second Saturday of every other month!
@media only screen and (max-width: 991px) {
.screen-placer-right {
float: none;
padding-left:0px;"
}
.screen-placer-left {
float: none;
padding-right:0px;"
}
}
Join the Myotonic Dystrophy Foundation (MDF) for a webinar on February 11th at 4pm Pacific to learn how you can help increase research funding for myotonic dystrophy (DM) and become a US State Advocacy Captain.
Join us for a Meet the Myotonic Dystrophy Drug Developers webinar with Dyne Therapeutics!
Join us for a Mountain West VIRTUAL Support Group Meeting!
Rare Disease Day is a worldwide event designed to improve the lives of millions of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public.
Join us for an In Person Finger Lakes & Upstate NY Support Group Meeting!
Join us for a Washington Regional Myotonic Dystrophy Support Group!
Join us for a Regional Virginia Myotonic Dystrophy Support Group!
Join us for a virtual meeting of the California Regional Myotonic Dystrophy Support Group!
Third Sunday of Every Other Month
1:30 PM - 3:00 PM Pacific Time
Join us for a VIRTUAL Portland Regional Support Group Meeting!
Join us for a virtual meeting of the New England Regional Myotonic Dystrophy Support Group!
Join us for a Mountain West Regional Support Group Meeting!
Join us for a Kanas City Regional Myotonic Dystrophy Support Group!
Join us for a virtual meeting of the Ohio Myotonic Dystrophy Support Group!
You are invited to a support group meeting for the Maryland Myotonic Dystrophy Community!
You are invited to a virtual meeting for Caregivers of Juvenile-onset Adults (JOA)!
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
Nous vous invitons à assister à une rencontre virtuelle du groupe de soutien francophone!
Learn more about the a virtual myotonic dystrophy support group for the myotonic dystrophy community in Florida. Adults living with DM1, DM2, and their Caregivers are all welcome.
Join us for our DM2 Caregivers Virtual Support Group Meeting!
Join us for a Virtual Meeting of the Chicago Myotonic Dystrophy Support Group!
Join us for a Virtual Meeting of the Chicago Regional Myotonic Dystrophy Support Group!
Join us for a Virtual Meeting of the Chicago Myotonic Dystrophy Support Group!
Learn more about a Virtual Myotonic Dystrophy Support Group for Caregivers of Children with CDM.
Join us for a virtual meeting of the Canada Myotonic Dystrophy Support Group!
You are invited to a virtual meeting for Caregivers of Juvenile-onset Adults (JOA)! Join MDF Support Group Facilitator, Ann Woodbury, on the 3rd Tuesday of every month in a confidential, supportive space for parents, guardians, and caregivers to share and connect.
Give the gift of hope this #GivingTuesday—make a life-changing impact for individuals and families living with Myotonic Dystrophy. Your donation will support critical research, advocacy, and community programs that offer hope and resources to those in need.
You are invited to an MDF support group meeting for the Kanas City Myotonic Dystrophy Community!
You are invited to an in person meeting for the New York Myotonic Dystrophy Community! Join MDF Support Group Facilitator, Emily Jones and Lois Schenk, for an in person meeting on Saturday, December 14th!
Register now for a Meet the Myotonic Dystrophy Drug Developers webinar with Lupin Neurosciences!
Join us for a VIRTUAL meeting of the Texas Regional Myotonic Dystrophy Support Group!
Do you have questions for myotonic dystrophy (DM) doctors? Join gastroenterologist, Dr. Irene Sonu, for an "Ask the Expert" webinar on gastrointestinal (GI) issues and DM!
You are invited to an in person meeting for the New York Myotonic Dystrophy Community! Join MDF Support Group Facilitator, Emily Jones and Lois Schenk, for an in person meeting on Saturday, October 26th!
Learn more about a Virtual Myotonic Dystrophy Support Group for Caregivers of Children with CDM.
Join MDF Support Group Facilitators, Barbara Ochoa & Rose Albanese! Learn more about our Virtual Myotonic Dystrophy Support Group for Southern California.
You are invited to an MDF support group meeting for the Kanas City Myotonic Dystrophy Community!
Do you have questions for myotonic dystrophy (DM) doctors and therapists? Join certified genetic counselor, Shawna Feeley, MS, CGC, from the Seattle Children's Hospital, for an "Ask the Expert" webinar on DM and Genetic Testing & Counseling!
Learn more about the a virtual myotonic dystrophy support group for the myotonic dystrophy community in Florida. Adults living with DM1, DM2, and their Caregivers are all welcome.
Join MDF Support Group Facilitators, Suzzanne Perkins & Scott Virgo, on the 2nd Saturday of every month!
Join us for a Kanas City Myotonic Dystrophy Support Group!
Sunday, August 11th
1:30 - 3:30 PM Central Time
RSM US LLP Offices, Country Club Plaza, 11th Floor,
Do you have questions for myotonic dystrophy (DM) doctors and therapists? Join cardiologist, Dr. William J. Groh, for an "Ask the Expert" webinar on DM and the heart!
You are invited to a Zoom Meeting for the Affected Women's Support Group! This group is for women diagnosed with DM1 or DM2. Join facilitators Haley Martinelli and Jeannine DeSoi, every three months on the second Wednesday.
You are invited to a Zoom Meeting for the Affected Women's Support Group! This group is for women diagnosed with DM1 or DM2. Join facilitators Haley Martinelli and Jeannine DeSoi, every three months on the second Wednesday.
You are invited to a Zoom Meeting for the Affected Women's Support Group! This group is for women diagnosed with DM1 or DM2. Join facilitators Haley Martinelli and Jeannine DeSoi, every three months on the second Wednesday.
@media only screen and (max-width: 768px) {
.screen-placer {
float: none;
padding-left:0px;"
}
}
Myotonic Dystrophy in Motion Awareness Month
Week 3: The Natural World
Webinar: The Benefits of Nature & Breathwork
Myotonic Dystrophy in Motion Awareness Month
Week 4: Let's Keep it Going!
Live Class: Virtual Zumba
Myotonic Dystrophy in Motion Awareness Month
Week 1: Come as You Are!
Stump the Doctor & Community Panel
Myotonic Dystrophy in Motion Awareness Month
Week 2: Little Things Count
Webinar: Exercises for Everyday Life
Join us for a virtual makeup session for the Massachusetts Myotonic Dystrophy Support Group meeting!
You are invited to a Zoom meeting for myotonic dystrophy caregivers!
Join us for a Virtual Meeting of the Chicago Myotonic Dystrophy Support Group!
Register now for a special presentation on the PGN-EDODM1 program overview by the PepGen team and investigator Dr. Johanna Hamel.
Register now for a special presentation on new DYNE-101 ACHIEVE Clinical Trial Data by Chief Medical Affairs Officer, Ash Dugar, PhD, MBA.
Learn more about a Myotonic Dystrophy Support Group in Kansas City
You are invited to a Zoom Meeting for the Affected Men's Support Group! This group is for men diagnosed with DM1 or DM2. Join facilitators Shaun Moore, Ryan Vogels, and Jim Dolan, on the first Monday of every quarter.
Join us for our DM2 Virtual Support Group Meeting!
1st & 3rd Thursdays of Every Month
Cecilia Dupecher, Ph.D., Program Manager, Peer Reviewed Medical Research Program (PRMRP) at the U.S. Army’s Congressionally Directed Medical Research Programs (CDMRP) will be leading an informative webinar on April 16th to briefly explain the program’s history and purpose and discuss how researchers can apply for awards under PRMRP as part of the fiscal year 2024 review cycle.
.board{
width:100%;
max-width:400px;
border-radius:5px;
}
Join us for a Hybrid Meeting of the Michigan Myotonic Dystrophy Support Group!
Learn more about a Myotonic Dystrophy Support Group in Kansas City
Join us for our next virtual Chicago area myotonic dystrophy support group meeting!
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
Myotonic Dystrophy Family Day
July 27th, 2024
Join us for a Meet the Myotonic Dystrophy Drug Developers webinar with Juvena Therapeutics! Register now for a special presentation on their DM program.
Join us for a virtual MDF Caregivers Support Group Meeting! Join MDF Support Group Facilitator, Ted Salwin, every month. This MDF virtual support group is for caregivers of individuals living with DM - parents of children, spouses/partners, grandparents - all caregivers are welcome.
Join us for a virtual MDF Caregivers Support Group Meeting! Join MDF Support Group Facilitator, Ted Salwin and Annette Rnjak, every month. This MDF virtual support group is for caregivers of individuals living with DM - parents of children, spouses/partners, grandparents - all caregivers are welcome.
Join us for a virtual meeting of the Ohio Myotonic Dystrophy Support Group!
Join us for a virtual meeting of the Ohio Myotonic Dystrophy Support Group!
Join us for a Virtual Washington Myotonic Dystrophy Support Group!
Join us for a Virtual Washington Myotonic Dystrophy Support Group!
Join us for a Virtual Washington Myotonic Dystrophy Support Group!
Join us for a Virtual Washington Myotonic Dystrophy Support Group!
Learn more about a Virtual Myotonic Dystrophy Support Group for Caregivers of Children with CDM.
Learn more about a series of VIRTUAL happy hours hosted by two of our incrediblesupport group facilitators, Mindy Kim and Kristen McClintock.
Join us for a meeting of the Mountain West Myotonic Dystrophy Support Group!
Join us Virtually for for the Michigan Myotonic Dystrophy Support Group!
Learn more about the a virtual myotonic dystrophy support group for the DM community in North & South Carolina!
Join us for a VIRTUAL meeting of the Portland, OR Myotonic Dystrophy Support Group!
Join us for a VIRTUAL meeting of the Massachusetts state Myotonic Dystrophy Support Group!
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
Join MDF Support Group Facilitators, Barbara Ochoa & Rose Albanese! Learn more about our Virtual Myotonic Dystrophy Support Group for Southern California.
Join us for JOA Caregivers Virtual Meeting!
Every 3rd Tuesday of Every Other Month
11:00 AM - 12:00 PM Mountain Time
MDF is bringing the Conference to Seattle, WA in 2024! We are excited for our six Regional Conferences across the United States. These one-day conferences will connect local communities, bring DM resources to the DM community, and provide attendees with the opportunity to connect more closely with local researchers and clinicians.
MDF is bringing the Conference to Los Angeles, CA in 2024! We are excited for our six Regional Conferences across the United States. These one-day conferences will connect local communities, bring DM resources to the DM community, and provide attendees with the opportunity to connect more closely with local researchers and clinicians.
MDF is bringing the Conference to Houston, TX in 2024! We are excited for our six Regional Conferences across the United States. These one-day conferences will connect local communities, bring DM resources to the DM community, and provide attendees with the opportunity to connect more closely with local researchers and clinicians.
MDF is bringing the Conference to Iowa City, IA in 2024! We are excited for our six Regional Conferences across the United States. These one-day conferences will connect local communities, bring DM resources to the DM community, and provide attendees with the opportunity to connect more closely with local researchers and clinicians.
MDF brought the Conference to Boston, MA in 2024! These one-day conferences will connect local communities, bring DM resources to the DM community, and provide attendees with the opportunity to connect more closely with local researchers and clinicians.
MDF brought the Conference to Gainesville, FL in 2024! We are excited for our six Regional Conferences across the United States. These one-day conferences will connect local communities, bring DM resources to the DM community, and provide attendees with the opportunity to connect more closely with local researchers and clinicians.
Join us to make myotonic dystrophy one of the most prominent disease voices raised this month!
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
We hope you can join us to celebrate and help raise funds for the Myotonic Dystrophy Foundation's critically-important work on behalf of individuals and families living with myotonic dystrophy. Everyone is welcome so mark your calendar for our 2024 MDF Gala on September 14th!
Join us for a meeting of the Mountain West Myotonic Dystrophy Support Group!
Join us for a meeting of the Mountain West Myotonic Dystrophy Support Group!
Join us for a virtual meeting of the Canada Myotonic Dystrophy Support Group!
Join us for a virtual meeting of the Canada Myotonic Dystrophy Support Group!
Join us for a virtual meeting of the Canada Myotonic Dystrophy Support Group!
Join us for a virtual meeting of the Canada Myotonic Dystrophy Support Group!
Support Group Facilitator Chuck Hunt is organizing a VIRTUAL meeting of the Atlanta, GA myotonic dystrophy support group. Everyone in the Georgia area is invited! Chat with new people and say hello to old friends!
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Learn more about the a virtual myotonic dystrophy support group for the myotonic dystrophy community in Florida. Adults living with DM1, DM2, and their Caregivers are all welcome.
Learn more about the a virtual myotonic dystrophy support group for the myotonic dystrophy community in Florida. Adults living with DM1, DM2, and their Caregivers are all welcome.
Learn more about the a virtual myotonic dystrophy support group for the myotonic dystrophy community in Florida. Adults living with DM1, DM2, and their Caregivers are all welcome.
Join us for for the Michigan Myotonic Dystrophy Support Group!
Learn more about a Myotonic Dystrophy Support Group in San Diego, California
Learn more about a Myotonic Dystrophy Support Group in San Diego, California
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Learn more about a Myotonic Dystrophy Support Group in Kansas City.
Join us for a meeting of the Mountain West Myotonic Dystrophy Support Group!
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Join us for an IN-PERSON meeting of the Washington state Myotonic Dystrophy Support Group!
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
Learn more about a Summer Picnic for the Myotonic Dystrophy Support Group in Michigan.
Join us for a VIRTUAL meeting of the Washington state Myotonic Dystrophy Support Group!
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Join us for a VIRTUAL meeting of the Massachusetts state Myotonic Dystrophy Support Group!
MDF is hosting our first DM Day since the COVID-19 pandemic, in partnership with Kansas City Medical Center on Saturday, August 5th from 10:00 AM to 3:00 PM CST. Hear from world renowned experts, researchers, and those dedicated to improving the lives of people affected by this disease and their caregivers. Lunch will be provided.
Join us for a VIRTUAL meeting of the Washington state Myotonic Dystrophy Support Group!
// Set the date we're counting down to
var countDownDate = new Date("Nov 11, 2023 12:00:00").getTime();
// Update the count down every 1 second
var x = setInterval(function() {
// Get today's date and time
var now = new Date().getTime();
Support Group Facilitator Chuck Hunt is organizing a VIRTUAL meeting of the Atlanta, GA myotonic dystrophy support group. Everyone in the Georgia area is invited! Chat with new people and say hello to old friends!
Join us for a VIRTUAL meeting of the Mountain West Myotonic Dystrophy Support Group!
Join us for a VIRTUAL meeting of the Mountain West Myotonic Dystrophy Support Group!
Join us for JOA Caregivers Virtual Meeting!
Every 3rd Tuesday of the Month
11:00 AM - 12:00 PM Mountain Time
Join MDF Support Group Co-Facilitators, Guillermo Zubillaga, Jan Jaffe, and Glenda Winson, on Sunday, June 25th. Learn more about a Virtual Myotonic Dystrophy Support Group in New York City.
May 2023: PepGen. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Learn more about an event hosted by the Denver, Colorado myotonic dystrophy support group.
Join us for a virtual MDF Caregivers Support Group Meeting!
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
July 2023: AMO Pharma. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
MDF invites advocates from across America to email, call, and meet with their U.S. Senators and Representatives during our 2023 Advocacy Week campaign April 17-21st to raise DM awareness and urge Congress to increase federal funding for myotonic dystrophy (DM) research to help us find a cure.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
June 2023: ARTHEx biotech. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Join us for the MDF Portland Support Group Spring Potluck!
Saturday, April 15th
1:00 - 4:00 PM Pacific
Learn more about a HYBRID Myotonic Dystrophy Support Group in Michigan.
Learn more about a Myotonic Dystrophy Support Group in Kansas City
Learn more about a Myotonic Dystrophy Support Group in Kansas City
Learn more about the a virtual myotonic dystrophy support group for the myotonic dystrophy community in Florida. Adults living with DM1, DM2, and their Caregivers are all welcome.
Learn more about a Virtual Myotonic Dystrophy Support Group for Canada.
Join MDF Support Group Facilitator, Loraine Dressler, on the third Sunday of every other month! Learn more about our Virtual Myotonic Dystrophy Support Group for Southern California.
Join MDF Support Group Co-Facilitators, Guillermo Zubillaga, Jan Jaffe, and Glenda Winson, on Sunday, August 6th. Learn more about a Virtual Myotonic Dystrophy Support Group in New York City.
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
Learn more about a lunch hosted by the Denver, Colorado myotonic dystrophy support group.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
August 2023: Avidity Biosciences. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Cecilia Dupecher, Ph.D., Program Manager, Peer Reviewed Medical Research Program (PRMRP) at the U.S. Army’s Congressionally Directed Medical Research Programs (CDMRP) will be leading an informative webinar on February 24th to briefly explain the program’s history and purpose and discuss how researchers can apply for awards under PRMRP as part of the fiscal year 2023 review cycle.
April 2023: Dyne Therapeutics. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
In addition to the International Myotonic Dystrophy Awareness Day in September, we will continue to celebrate the annual International DM Family day on the 4th Saturday of July. Those living with DM sometimes feel isolated and overwhelmed. The Family Day is for the community to come together to support each other in a day of fun, to share stories and experiences within groups, a day to meet up with others and feel part of something bigger.
Join us for the MDF Portland Support Group Holiday Potluck!
*** Potlick delayed due to severe weather conidtions. ***
Rare Disease Month Advocacy Workshop
Monday, February 27th
12:00 PM - 1:00 PM PST
td {
padding: 12px 18px;
min-width: 20% !important;
}
table {
width: 100%;
max-width: 100%;
display: block;
table-layout: fixed;
overflow-x: auto;
border: collapse;
}
table tr td p,
table tr td h3,
table tr td {
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Cecilia Dupecher, Ph.D., Program Manager, Peer Reviewed Medical Research Program (PRMRP) at the U.S. Army’s Congressionally Directed Medical Research Programs (CDMRP) will be leading an informative webinar on February 24th to briefly explain the program’s history and purpose and discuss how researchers can apply for awards under PRMRP as part of the fiscal year 2023 review cycle.
Join us for a VIRTUAL meeting of the Washington state Myotonic Dystrophy Support Group!
Join us for our next hybrid Chicago area myotonic dystrophy support group meeting!
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
Learn more about a Myotonic Dystrophy Support Group in San Diego, California
Rare Disease Month Advocacy Workshop
Monday, February 27th
12:00 PM - 1:00 PM PST
Learn more about the a virtual myotonic dystrophy support group for the DM community in Finger Lakes region of New York state.
Join MDF Support Group Co-Facilitators, Guillermo Zubillaga, Jan Jaffe, and Glenda Winson, on Sunday, Septebmer 17th. Learn more about a Virtual Myotonic Dystrophy Support Group in New York City.
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Learn more about a Virtual Myotonic Dystrophy Support Group for Canada.
Support Group Facilitator Chuck Hunt is organizing a VIRTUAL meeting of the Atlanta, GA myotonic dystrophy support group. Everyone in the Georgia area is invited! Chat with new people and say hello to old friends!
Learn more about a Virtual Myotonic Dystrophy Support Group for Caregivers of Children with CDM.
Join us for a virtual MDF Caregivers Support Group Meeting! Join MDF Support Group Facilitator, Ted Salwin, on the first Saturday of every month. This MDF virtual support group is for caregivers of individuals living with DM - parents of children, spouses/partners, grandparents - all caregivers are welcome.
Learn more about a Virtual Myotonic Dystrophy Support Group for Caregivers of Children with CDM.
Learn more about a HYBRID Myotonic Dystrophy Support Group in Michigan.
Learn more about a Holiday Party for the MDF Myotonic Dystrophy Support Group in Michigan.
Learn more about an event hosted by the Denver, Colorado myotonic dystrophy support group.
Learn more about a series of VIRTUAL happy hours hosted by two of our incrediblesupport group facilitators, Mindy Kim and Kristen McClintock.
Learn more about the 2022 Holiday Party for the Kansas City, MO, Myotonic Dystrophy Support Group!
Join us for a virtual MDF Caregivers Support Group Meeting!
Estás invitado a nuestro Grupo de Soporte Virtual en Español! Unete al Myotonic Dystrophy Foundation (MDF) para una reunión virtual de aprendizaje, comunidad y esperanza para familias de habla hispana con DM.
Learn more about a HYBRID Myotonic Dystrophy Support Group in Michigan.
Join us for a VIRTUAL meeting of the Washington state Myotonic Dystrophy Support Group!
Learn more about a Virtual Myotonic Dystrophy Support Group for the Virginia DM community.
Join us for a virtual MDF Caregivers Support Group Meeting!
Join MDF Support Group Co-Facilitators, Guillermo Zubillaga, Jan Jaffe, and Glenda Winson, on Sunday, October 29th. Learn more about a Virtual Myotonic Dystrophy Support Group in New York City.
Estás invitado a nuestro Grupo de Soporte Virtual en Español de MDF!
Jueves 13 de Octubre
3:00 PM a 4:00 PM PST (hora Pacifico US)
Regístrese para Zoom en
Join us for a virtual MDF Caregivers Support Group Meeting!
You're invited to a virtual support group for parents or guardians of children living with myotonic dystrophy on Sunday, October 30th from 1 to 3 PM Pacific Time!
Learn more about a HYBRID Myotonic Dystrophy Support Group in Michigan
Learn more about a Myotonic Dystrophy Support Group in Kansas City
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
Learn more about a Myotonic Dystrophy Support Group in Kansas City
Join us for a virtual MDF Caregivers Support Group Meeting!
Learn more about a Myotonic Dystrophy Support Group in San Diego, California
Join MDF Support Group Co-Facilitators, Guillermo Zubillaga, Jan Jaffe, and Glenda Winson, on Sunday, December 10th. Learn more about a Virtual Myotonic Dystrophy Support Group in New York City.
Learn more about a Virtual Myotonic Dystrophy Support Group for Canada.
Join us for a VIRTUAL meeting of the Washington state Myotonic Dystrophy Support Group!
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
You're invited to a virtual support group for parents or guardians of children living with myotonic dystrophy on Sunday, August 28th from 1 to 3 PM Pacific Time!
Join MDF on International Myotonic Dystrophy Awareness Day on September 15th to learn how advocates can increase myotonic dystrophy (DM) awareness, grow DM research funding, and advance policies to accelerate the approval of drugs to treat and eventually cure DM. As Congress advances spending legislation that includes biomedical research funding, we will be closely following these proceedings, and as we identify opportunities for MDF advocates to influence this legislation, we will be urging advocates to follow-up with their US Senators and Representatives.
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
Learn more about a Virtual Myotonic Dystrophy Support Group in Arizona.
Learn more about a Virtual Myotonic Dystrophy Support Group in New York City.
You're invited to a virtual support group for parents or guardians of children living with myotonic dystrophy on Sunday, June 26th from 1 to 3 PM Pacific Time!
July 2022: Harmony Biosciences. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Learn more about a myotonic dystrophy support group meeting in Kansas City, Missouri.
Join us for a virtual MDF Caregivers Support Group Meeting!
Learn more about a Myotonic Dystrophy Support Group in San Diego, California
Join us for a virtual meeting of the Massachusetts Myotonic Dystrophy Support Group!
Monday, May 23rd
7:00 - 8:00 PM ET
June 2022: ARTHEx biotech. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Join us for a VIRTUAL meeting of the Seattle Myotonic Dystrophy Support Group!
Support Group Facilitator Chuck Hunt is organizing a VIRTUAL meeting of the Atlanta, GA myotonic dystrophy support group. Everyone in the Georgia area is invited! Chat with new people and say hello to old friends!
Support Group Facilitator Chuck Hunt is organizing a VIRTUAL meeting of the Atlanta, GA myotonic dystrophy support group. Everyone in the Georgia area is invited! Chat with new people and say hello to old friends!
Join MDF Advocates in Urging Congress to Help Cure Myotonic Dystrophy by Increasing Federal Funding for DM Research
Thursday, April 21, 2022
12:00 - 1:00 PM Pacific / 3:00 - 4:00 PM Eastern
Join MDF Support Group Facilitator Kim McPeek for a new support group addressing the needs of the Myotonic Dystrophy Type 2 caregiver community. This group was formed to provide space for people caring for someone living with Myotonic Dystrophy Type 2 to share their experiences, stories and support each other.
Join us for our next virtual Chicago myotonic dystrophy support group meeting!
Join us for our next virtual Chicago myotonic dystrophy support group meeting!
Join us for our next virtual Chicago myotonic dystrophy support group meeting!
Join us for our next virtual Chicago myotonic dystrophy support group meeting!
Learn more about a Virtual Myotonic Dystrophy Support Group in Arizona.
Learn more about a Virtual Myotonic Dystrophy Support Group in Florida
Join us for a virtual MDF Caregivers Support Group Meeting!
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
Advocates from across the United States will be meeting virtually with their members of Congress and staff urging them to continue DM federal research funding through the Department of Defense Peer Reviewed Medical Research Program (PRMRP), secure new DM research funding as part of the Congressionally Directed Medical Research Program (CDMRP) and initiate a new NIH research effort focused on DM and related repeat expansion diseases.
July 2022: Avidity Biosciences. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
You're invited to a virtual community meeting for parents or guardians of children living with myotonic dystrophy on Sunday, April 24th from 1 to 3 PM Pacific Time!
Join us for a VIRTUAL meeting of the Seattle Myotonic Dystrophy Support Group!
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Kansas City, MO Myotonic support group.
Join us for our next virtual myotonic dystrophy support group meeting!
Learn more about a Virtual Myotonic Dystrophy Support Group in Florida
Join us for a VIRTUAL meeting of the Portland, OR Myotonic Dystrophy Support Group!
Join us for a virtual MDF Caregivers Support Group Meeting!
Learn more about a Virtual Myotonic Dystrophy Support Group in Arizona.
August 2022: PepGen. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
April 2022: Dyne Therapeutics. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
Do you have questions for DM doctors and therapists? Join a leading medical or research professional for an “Ask-the-Expert” session on Disability Rights, Future Planning & Special Needs Trusts.
Do you have questions for DM doctors and therapists? Join a leading medical or research professional for an “Ask-the-Expert” session on DM & Palliative Care with Shauna Gibbons, MD, an Assistant Professor of Medicine in the Division of Palliative Medicine at the University of Kansas Medical Center.
Do you have questions for DM doctors and therapists? Join a leading medical or research professional for an “Ask-the-Expert” session on DM & Mental Health.
Do you have questions for DM doctors and therapists? Join a leading medical or research professional for an “Ask-the-Expert” session.
Do you have questions for DM doctors and therapists? Join Johanna Hamel, MD of the University of Rochester for an “Ask-the-Expert” session on the DM2 & Managing Pain. All members of the DM community are welcome to attend and are encouraged to ask questions in advance using this registration form or through the chat during the live Q&A.
Do you have questions for DM doctors and therapists? Join Cynthia Gagnon, PhD, and Isabelle Fisette-Paulhus, MPT of the Université de Sherbrooke for an “Ask-the-Expert” session on the Intimacy.
Join us for a virtual MDF Caregivers Support Group Meeting!
You're invited to a virtual community meeting for Missouri on Sunday, May 15th from 1 - 3 PM Central Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for Maryland on Sunday, April 24th from 1 - 3 PM Eastern Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for Pennsylvania on Sunday, March 27th from 1 - 3 PM Eastern Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for New York on Sunday, March 13th from 1 - 3 PM Eastern Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for Iowa on Sunday, February 27th from 1 - 3 PM Central Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for Texas on Sunday, February 13th from 1 - 3 PM Central Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for Washington, DC on Sunday, February 13th from 12 - 2 PM Eastern Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for Northern California on Sunday, February 27th from 1 - 3 PM Pacific Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
You're invited to a virtual community meeting for Virginia on Sunday, January 30th from 1 - 3 PM Eastern Time! Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
MDF hosts weekly Facebook chats led by two of our support group facilitators, Mindy Kim or Bill Nuttall.
Learn more about meetings hosted by MDF's Ohio support group, the 2nd Tuesday of every other month.
Learn more about a VIRTUAL Holiday Party hosted by the Kansas City, MO Myotonic support group.
Learn more about the a virtual myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Join us for a virtual MDF Caregivers Support Group Meeting!
Do you have questions for DM doctors and therapists? Join a panel of experts including Drs. Robert J. Graham, Ami Mankodi, Oscar H. Mayer, and Aruna Subramanian for an “Ask-the-Expert” session on COVID-19 & Vaccines. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Kansas City, MO Myotonic support group.
You are invited to a new virtual meetup for adults over 50 living with DM1! Please note these meetings are only for individuals living with DM1 who are 50 or older.
Learn more about the a virtual myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Join us for a virtual MDF Caregivers Support Group Meeting!
Join us for a virtual MDF Caregivers Support Group Meeting!
Get Technical Assistance Ahead of the Conference
Join MDF for a virtual community meeting for Washington, DC on Saturday, August 14 from 12:00 to 2:00 PM Eastern Time. Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
Join MDF for a virtual community meeting for Texas on Saturday, August 21 from 12:00 to 2:00 PM Central Time. Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
Join MDF for a virtual community meeting for Washington on Saturday, August 28 from 12:00 to 2:00 PM Pacific Time. Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
Support Group Facilitator Chuck Hunt is organizing a VIRTUAL meeting of the Atlanta, GA myotonic dystrophy support group. Everyone in the Georgia area is invited! Chat with new people and say hello to old friends!
Join MDF for a virtual community meeting for Illinois on Saturday, August 7 from 10:30 AM to 12:30 PM Central Time. Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
Join MDF for a virtual community meeting for Florida on Saturday, July 31 from 1pm-3pm ET. Anyone living with DM of any kind – DM1, DM2, congenital, juvenile-onset – and any loved one or family member is welcome.
The 2022 MDF Annual Conference - sometimes called the “family reunion” - took place September 9th & 10th, at Paradise Point in San Diego, CA. With over 625 registrants, and hundreds of participants in-person & online - joining from 39 US States and 14 countries - we are thrilled that so many of our incredible community members and professionals could once again unite to advance the MDF mission of Community, Care, and a Cure!
Join MDF for a virtual “happy hour” in honor of Myotonic Dystrophy Family Day on Saturday, July 24th, from 4-6 PM Pacific / 7-9 PM Eastern.
Join us for a virtual MDF Caregivers Support Group Meeting!
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Do you have questions for DM doctors and therapists? Join Missy Dixon, PhD, MS of the University of Utah for an “Ask-the-Expert” session on DM and Anxiety. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
Do you have questions for DM doctors and therapists? Join Dr. Faisal Fecto, MD, PhD, from the Stanford University School of Medicine for an “Ask-the-Expert” session on myotonic dystrophy and the brain. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Kansas City, MO Myotonic support group.
Join the Myotonic Dystrophy Foundation's Indianapolis, IN support group for a virtual meeting via Zoom!
Join us for a virtual MDF Caregivers Support Group Meeting!
2021 Virtual Gala!
Friday, October 22, 2021
5:30 PM Pacific / 8:30 PM Eastern
Join us for a VIRTUAL meeting of the Illinois Myotonic Dystrophy Support Group!
Learn more about the a virtual myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Atlanta, GA Myotonic support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about the a virtual myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Join us for a virtual MDF Caregivers Support Group Meeting!
Join us for a VIRTUAL meeting of the Portland, OR Myotonic Dystrophy Support Group!
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Kansas City, MO Myotonic support group.
Join us for a VIRTUAL meeting of the Portland, OR Myotonic Dystrophy Support Group!
Learn more about the a virtual myotonic dystrophy support group for our community in Finger Lakes, NY, US.
International Myotonic Dystrophy Awareness Day, September 15th, aims to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy.
Join us for a virtual MDF Caregivers Support Group Meeting!
June 2021: ARTHEx biotech. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Learn more about a Virtual Myotonic Dystrophy Support Group in Orange County, CA.
Do you have questions for DM doctors and therapists? Join Valeria Sansone, MD, PhD of the NEuroMuscular Omnicentre (NEMO) for a “Ask-the-Expert” session on DM and the Lungs. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Rare Disease Day is a worldwide event designed to improve the lives of millions of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public.
To prepare for Rare Disease Day, the Myotonic Dystrophy Foundation advocacy team is hosting a webinar on February 8th to review our advocacy priorities, and assist advocates in understanding how to contact your congressional representatives.
Do you have questions for DM doctors and therapists? Join Kiera Berggren, MA/CCC-SLP, MS of Virginia Commonwealth University for a “Ask-the-Expert” session on Speech, Language, and Swallowing with DM. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
Learn more about the a virtual myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Learn more about an event hosted by MDF's Ottawa support group.
Learn more about a series of VIRTUAL happy hours hosted by our North Carolina support group facilitator, Mindy Kim.
May 2021: Biogen and Ionis Pharmaceuticals. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Join us for a VIRTUAL meeting of the Portland, OR Myotonic Dystrophy Support Group!
Do you have questions for DM doctors and therapists? Join Pradeep P.A. Mammen, MD, FACC, FAHA, FHFSA of the UT Southwestern Medical Center for a “Ask-the-Expert” session on the heart. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
Do you have questions for DM doctors and therapists? Join Leila Neshatian, MD, MSc of Stanford University for a “Ask-the-Expert” session on the GI tract. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
Do you have questions for DM doctors and therapists? Join Tina Duong, PT, PhD of Stanford University and Katy Eichinger, PT, PhD, DPT, NCS of the University of Rochester for a “Ask-the-Expert” session on exercise. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.
Almost 700 of our incredible community members tuned in from all over the globe to make the 2021 Virtual MDF Annual Conference a huge success! We would like to thank all of our Speakers, Exhibitors, Sponsors, and Support Group Facilitators, who were critical partners in putting on this spectacular event.
April 2021: Expansion Therapeutics. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
July 2021: Harmony Biosciences. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
June 2021: Lupin Neurosciences. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
August 2021: Avidity Biosciences. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
March 2021: AMO Pharma. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
February 2021: Dyne Therapeutics. Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Join us for a virtual MDF Caregivers Support Group Meeting!
Learn more about a Virtual Myotonic Dystrophy Support Group in Orange County, CA.
MDF hosts a JOA specific monthly Facebook chat on the first Tuesday of each month, led by one of our support group facilitators.
The Myotonic Dystrophy Foundation hosts bimonthly Facebook chats on the first Tuesday of each month for the congenital and juvenile-onset community.
MDF hosts bimonthly Facebook chats on the first and third Tuesday of each month, led by one of our support group facilitators.
Learn more about meetings hosted by MDF's Ohio support group, the 2nd Tuesday of every other month.
Join North Carolina SGF and Friday Happy Hour host, Mindy Kim, for a chair tap dance class specifically designed for the myotonic dystrophy community.
Learn more about a Virtual Myotonic Dystrophy Support Group in Orange County, CA.
Learn more about an event hosted by MDF's Ottawa support group.
Join us for a VIRTUAL meeting of the Seattle Myotonic Dystrophy Support Group!
Join us for a VIRTUAL meeting of the Portland, OR Myotonic Dystrophy Support Group!
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Kansas City, MO Myotonic support group.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Join Myotonic Dystrophy Foundation's Indianapolis, IN support group for a virtual meeting via Zoom!
Join us for a virtual MDF Caregivers Support Group Meeting!
Join Nationally Certified Pilates Teacher, Certified Strength and Conditioning Specialist, Rachel Kahn, for a series of strength training classes designed for the myotonic dystrophy community.
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Learn more about the a virtual myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Join us for a virtual MDF Caregivers Support Group Meeting!
Join us for a VIRTUAL meeting of the Illinois Myotonic Dystrophy Support Group!
Learn more about a Virtual Myotonic Dystrophy Support Group in Orange County, CA.
Join us for a VIRTUAL meeting of the Illinois Myotonic Dystrophy Support Group!
Learn more about a VIRTUAL Holiday Party hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by MDF's Northern California support group.
Learn more about a VIRTUAL event hosted by Myotonic's Northern California support group.
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Join us for a virtual MDF Caregivers Support Group Meeting!
Join us for a VIRTUAL meeting to re-connect with friends and make new connections in the JOA Community!
Learn more about a VIRTUAL event hosted by Myotonic's Northern California support group.
Learn more about an event hosted by MDF's Michigan support group.
Learn more about the a virutal myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Learn more about an event hosted by the Denver, Colorado myotonic dystrophy support group.
Learn more about an event hosted by the Denver, Colorado myotonic dystrophy support group.
Join us for a VIRTUAL meeting of the Mountain West Myotonic Dystrophy Support Group!
Join Myotonic Dystrophy Foundation's Indianapolis, IN support group for an impromptu and virtual meeting via Zoom!
Learn more about a VIRTUAL meeting of the Myotonic Dystrophy Support Group in Florida.
Learn more about a VIRTUAL event hosted by Myotonic's Northern California support group.
Learn more about a VIRTUAL event hosted by the Myotonic Dystrophy Foundation's Northern California support group.
Join us for a virtual MDF Caregivers Support Group Meeting!
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Learn more about the a virutal myotonic dystrophy support group for our community in Finger Lakes, NY, US.
Join us for a VIRTUAL meeting of the Illinois Myotonic Dystrophy Support Group!
Join us for a VIRTUAL meeting of the Mountain West Myotonic Dystrophy Support Group!
Learn more about a VIRTUAL meeting of the Myotonic Dystrophy Support Group in Florida.
Learn more about an event hosted by an Myotonic support group.
Learn more about an event hosted by Myotonic's Ypsilanti, MI support group.
Learn more about an event hosted by Myotonic's Ypsilanti, MI support group.
Learn more about an event hosted by Myotonic's Ypsilanti, MI support group.
Join us for a virutal meeting for Myotonic Caregivers Support Group Meeting!
Learn more about a series of VIRTUAL happy hours hosted by our North Carolina support group facilitator, Mindy Kim.
Learn more about a VIRTUAL event hosted by Myotonic's Northern California support group.
Mark your calendars for September 25th & 26th for the Myotonic Dystrophy Foundation 2020 Virtual Conference! This year's conference will include sessions exploring symptom management, research and drug development, updates from the Foundation, and more!
Join us for a VIRTUAL meeting of the Mountain West Myotonic Dystrophy Support Group!
Join us for a VIRTUAL meeting of the Illinois Myotonic Dystrophy Support Group!
Learn more about a VIRTUAL meeting of the Myotonic Dystrophy Support Group in Florida.
Learn more about a VIRTUAL event hosted by Myotonic's Northern California support group.
Learn more about a series of VIRTUAL happy hours hosted by our North Carolina support group facilitator, Mindy Kim.
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Since 2015, the Utah Program for Inherited Neuromuscular Disorders (UPIN) has hosted an annual conference to bring together leading researchers, clinicians, and families living with neuromuscular disorders. They are excited to announce that this year they will be taking this community tradition VIRTUAL!
Learn more about our VIRTUAL happy hour hosted by myotonic dystrophy support group facilitator Mindy Kim, Friday June 26th.
Join us for the Myotonic Dystrophy Advocacy Workshop
Monday, July 20th
12:00 PM - 1:00 PM PDT
Join us for a VIRTUAL Northern California myotonic dystrophy support group meeting!
Learn more about a VIRTUAL meeting hosted by the Myotonic support group in Portland, OR, USA.
Learn more about a Virtual Myotonic Support Group for the Orange County, CA support group.
Join Myotonic's Indianapolis, IN support group for an impromptu and virtual meeting via Zoom!
Join us for a VIRTUAL Northern California myotonic dystrophy support group meeting!
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Atlanta, GA Myotonic support group.
Join us for a VIRTUAL Northern California myotonic dystrophy support group meeting!
Join us each Monday at 12 PM PDT for a fun Chair Yoga session. No yoga experience necessary. Yoga is for every body!
Learn more about a Virtual Myotonic Support Group for the Orange County, CA support group.
Learn more about an event hosted by Myotonic's Ypsilanti, MI support group.
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Due to the inability to hold "in person" support groups this month, Myotonic is holding additional virtual meetings and Facebook chats. We hope to "see" you there!
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Atlanta, GA Myotonic support group.
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Kansas City, MO Myotonic support group.
Learn more about a VIRTUAL myotonic dystrophy support group meeting hosted by the Atlanta, GA Myotonic support group.
Join us for a VIRTUAL meeting of the Dallas, TX myotonic dystrophy support group!
Join us for a VIRTUAL Northern California myotonic dystrophy support group meeting!
Myotonic invites you to join our Friday Afternoon Webinar Series featuring presentations by DM expert clinicians, researchers, community members, and more!
Join us for a virtual meeting for Myotonic Caregivers Support Group Meeting!
Due to the inability to hold "in person" support groups this month, MDF is holding additional virtual meetings and Facebook chats. We hope to "see" you there!
Join Myotonic's Indianapolis, IN support group for an impromptu and virtual meeting via Zoom!
Join Northern California Support Group Facilitator, Leslie Krongold, for a virtual support group meeting.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Learn more about an event hosted by Myotonic's Ypsilanti, MI support group.
Learn more about an event hosted by Myotonic's Ypsilanti, MI support group.
Learn more about a VIRTUAL event hosted by Myotonic's Northern California support group.
Join us for our next myotonic dystrophy support group meeting!
Learn more about an event hosted by the Kansas City myotonic dystrophy support group.
Join families, caregivers, and all other rare disease stakeholders at this fun, family friendly event! Learn about the challenges people affected by rare diseases, such as myotonic dystrophy, face and the resources available to address these challenges.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Join Support Group Facilitator Ted Salwin for a night of bowling in Brazil, IN!
Learn more about an event hosted by Myotonic's Worthington, OH support group.
Learn more about an event hosted by Myotonic's Worthington, OH support group.
Learn how you can make a difference! Join MDF for a Community Call on January 29 to discuss upcoming events, tips and tricks for planning your own event, an advocacy update on the current legislative landscape and how international events like Rare Disease Day are making a huge impact.
Learn more about an event hosted by a Myotonic support group.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
Learn more about an event hosted by Myotonic's Ypsilanti, MI support group.
Learn more about an event hosted by the Ypsilanti, MI Myotonic support group.
Learn more about the Myotonic Support Group Meeting in Tampa, FL.
Join us for Myotonic's Northern California Support Group Meeting on January 12!
Join us for our Support Group in Indianapolis, IN, USA!
Myotonic hosts bimonthly Facebook chats on the first and third Tuesday of each month, led by one of our support group facilitators.
January 11, 2020
10:00 AM - 3:00 PM
HFSC Research & Education Center
370 Osgood Ave
New Britain, CT 06053
Learn more about an event hosted by a Myotonic support group.
This new Mytonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Learn more about the Myotonic Support Group in Orange County, CA.
Learn more about an event hosted by an Myotonic support group.
Learn more about an event hosted by a Myotonic support group.
Join us for a great day of golf to celebrate Rare Disease Day!
Sunday March 1, 2020
Topgolf
2000 IKEA Way
Columbus, OH 43140
Myotonic hosts a JOA specific monthly Facebook chat on the first Tuesday of each month, led by one of our support group facilitators.
Join us for our Congenital & Juvenile-onset Facebook Chat!
2:00 PM - 3:00 PM PDT
5:00 PM - 6:00 PM EDT
The 1st Tuesday of every Month!
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
Learn more about the Kansas City, MO Support Group Holiday Party on December 1, 2019.
This new Mytonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
This new Mytonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Learn more about an event hosted by a Myotonic support group.
Learn more about an event hosted by a Myotonic support group.
Learn more about an event hosted by a Myotonic support group.
Learn more about an event hosted by an Myotonic support group.
Join Myotonic's Northern California Support Group for an annual Holiday Party!
Since 2015, the Utah Program for Inherited Neuromuscular Disorders (UPIN) has hosted an annual conference to bring together leading researchers, clinicians, and families living with neuromuscular disorders.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
This new Mytonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Join us for our meeting in Dallas, TX on Sunday, June 30, 2019!
Learn more about an event hosted by an Myotonic support group.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Join us at the Seattle Myotonic Support Group Meeting!
11:00 AM
October 26th, 2019
The Gould's
9510 190th Place S.W.
Edmonds, WA 98020
Join Rare New England for their Annual Conference!
“Improving Health Care Experiences in the Rare Disease Community”
October 26, 2019
8 AM - 5 PM
Portland, ME
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Learn more about an event hosted by an Myotonic support group in Portland, OR, USA.
Learn more about an event hosted by a Myotonic support group in Portland, OR, USA.
Learn more about an event hosted by an MDF support group in Portland, OR, USA.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Juvenile-onset (JOA) Adult community. This group was formed to provide space for people with Juvenile-onset Myotonic Dystrophy and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
Learn more about an event hosted by an Myotonic support group.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
Learn more about an event hosted by a Myotonic support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Learn more about an event hosted by an MDF support group.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Juvenile-onset (JOA) Adult community. This group was formed to provide space for people with Juvenile-onset Myotonic Dystrophy and their loved ones to share their experiences, stories and support each other.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
Learn more about an event hosted by a Myotonic support group.
As part of MDF's 2019 JOA program initiative, we are launching an away camp experience for adults ages 18+ living with juvenile-onset myotonic dystrophy (This camp is exclusive to juvenile-onset adults).
Connecticut Patient Advocacy & Orphan Drug Workshop
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Myotonic hosts a JOA specific monthly Facebook chat on the first Tuesday of each month, led by one of our support group facilitators.
Ohio Patient Advocacy & Orphan Drug Workshop
Date: Friday, April 13, 2019
Oregon Patient Advocacy & Orphan Drug Workshop
Date: Friday, April 5, 2019
Telefonnische Gesprächsgruppe DM1/DM2
Tuesday, November 12th, 2019
7:00 PM - 8:30 PM CEST (Central European Time)
10:00 AM - 11:30 AM PDT (Pacific Daylight Time)
Call In:
Telefonnische Gesprächsgruppe DM1/DM2
Tuesday, October 8th, 2019
7:00 PM - 8:30 PM CEST (Central European Time)
10:00 AM - 11:30 AM PDT (Pacific Daylight Time)
Telefonnische Gesprächsgruppe DM1/DM2
Tuesday, September 10th, 2019
7:00 PM - 8:30 PM CEST (Central European Time)
10:00 AM - 11:30 AM PDT (Pacific Daylight Time)
Call In:
Telefonnische Gesprächsgruppe DM1/DM2
Tuesday, June 11th, 2019
7:00 PM - 8:30 PM CEST (Central European Time)
10:00 AM - 11:30 AM PDT (Pacific Daylight Time)
Learn more about an event hosted by a Myotonic support group.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Rare Disease Day is a worldwide event designed to improve the lives of millions of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public. It was launched in 2008 by EURODIS and takes place on the last day of February each year in more than 65 nations. The U.S. program is led by NORD. This year's theme is "bridging health and social care".
Celebrate Rare Disease Day at the Keck Graduate Institute, where students, faculty, and guests will gather to collaborate, discuss, and raise awareness for rare disease therapies.
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
MDF is hosting a new JOA specific monthly Facebook chat on the first Tuesday of each month, led by one of our support group facilitators.
Arkansas Patient Advocacy & Orphan Drug Workshop
Learn more about an event hosted by an Myotonic support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
This Myotonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
Advocate with MDF!
Patient Advocacy & Orphan Drug Workshop
Advocate with MDF!
Rare Disease Day Advocacy Event in San Francisco
Join MDF community members for a meeting with State Director to Sen. Feinstein, Jim Lazarus
Join Myotonic's Northern California Support Group at the Abilities Expo!
Friday, October 25th, 2019
11:00 AM - 5:00 PM
Learn more about an event hosted by an MDF support group.
Join the Northern California MDF Support Group at Great America!
Sunday, April 7th, 2019
Learn more about the Myotonic support group in Finger Lakes, NY, US.
Learn more about the MDF support group in Finger Lakes, NY, US.
Learn more about the MDF support group in Finger Lakes, NY, US.
Learn more about the MDF support group in Finger Lakes, NY, US.
Learn more about the MDF support group in Finger Lakes, NY, US.
Austausch zum Thema: Hilfsmittel bei DM1 / DM2
Tuesday, March 12th, 2019
7:00 PM - 8:00 PM CET (Central European Time)
This new Mytonic support group addresses the needs of the Myotonic Dystrophy Type 2 community. This group was formed to provide space for people with Myotonic Dystrophy Type 2 and their loved ones to share their experiences, stories and support each other.
Austausch zum Thema: therapeutische Ansätze bei DM1 / DM2
Tuesday, February 12th, 2019
7:00 PM - 8:00 PM CET (Central European Time)
Join us for our meeting in Indianapolis, U.S.!
December 14, 2019
1:00 - 3:00 PM
Indianapolis Public Library - Decatur Branch
5301 Kentucky Avenue
Indianapolis, IN 46221
Upcoming Virtual Support group for German-speaking Countries in Europe
Tuesday, January 8th, 2019
7:00 PM - 8:30 PM CET (Central European Time)
Call-in Number and Access Code will be provided when you join.
February 28, 2019
8:30 AM to 4:00 PM
Natcher Conference Center
NIH Building 45
45 Center Drive
Bethesda, MD 20894
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an Myotonic support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
2019 MDF (Myotonic) Annual Conference
Loews Philadelphia Hotel, Philadelphia, PA.
September 13 - 14, 2019
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions and a monthly Caregiver Virtual Support Group phone meeting. The Facebook group is closed, private and not viewable by anyone outside the group.
Attend the second Myotonic Dystrophy Day at Cincinnati Children's, a regional 1-day conference for DM1 and DM2 patients, families and caregivers to connect with each other, clinicians and researchers.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting.
Join us November 8-10, 2018 for an exciting, fun-filled weekend at the Mauna Kea Beach Hotel, located on one of the most beautiful beaches in Hawaii! Cycling events, walking the nature trails, stand up paddling, outrigger canoeing, sunset cruise or relaxing -- there is something for everyone at this event.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
MDF is hosting the first annual A Damn Good Time: Party to Make Myotonic Dystrophy History!, and you’re invited. Located at Sony Hall, NYC's hottest new premier venue on Thursday, June 7th, Doors at 6 PM.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Myotonic hosts bimonthly Facebook chats on the first and third Tuesday of each month, led by one of our support group facilitators.
Myotonic hosts bimonthly Facebook chats on the first and third Tuesday of each month, led by one of our support group facilitators.
MDF hosts bimonthly Facebook chats on the first and third Tuesday of each month, led by one of our support group facilitators.
MDF hosts bimonthly Facebook chats on the first and third Tuesday of each month, led by one of our support group facilitators.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Register now for a special presentation on "Achieving the Promise of FORCE to Deliver for Patients" by Chief Medical Affairs Officer, Ash Dugar, PhD, MBA.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Join us for our next meeting in Portland, Oregon and attend our Kickoff Potluck Dinner!
Learn more about an event hosted by an MDF support group.
Join Us for an MDF Support Group Meeting in Clearwater, Florida!
Join us for our meeting in Washington, D.C., U.S.!
Saturday, October 14, 2017
Room 5, Second Floor
1:00-3:00
Mark your calendars for the 2018 MDF Annual Conference, which will take place at the Gaylord Opryland Resort & Convention Center, in Nashville, TN, September 14 - 15, 2018.
Learn more about an event hosted by the Worthington, Ohio Support Group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by the Worthington, Ohio Support Group.
Craig and Lauren Evans will participate in the Philadelphia Tough Mudder in Coatesville, Pennsylvania this May, to raise funds for Myotonic and myotonic dystrophy research.
Please join the Bade & Fisher families for a beautiful day of golf, food and fun, and help raise funds critical to developing therapies for Myotonic Dystrophy and Duchenne muscular dystrophy. All Golf Classic proceeds will support research programs at the Myotonic and CureDuchenne.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions and a monthly Caregiver Virtual Support Group phone meeting.
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
The Annual MD Shenanigans Festival features a music festival, featuring music, a live art auction, raffles, and door prizes.
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
MDF DM Days are special one-day events that bring together MDF, clinicians and researchers to support our patient and family community, share information and resources, and provide close-to-home access to educational sessions.
The MDF Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions and a monthly Caregiver Virtual Support Group phone meeting.
The Myotonic Caregivers Support Group Program consists of a confidential Facebook discussion group, bimonthly Facebook live chat sessions, and a monthly Caregiver Virtual Support Group phone meeting. The Facebook group is closed, private and not viewable by anyone outside the group. To sign up, contact Myotonic Program Director Paul Formaker at 415-872-7924 or via email.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Learn more about an event hosted by an MDF support group.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting in December.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting in December.
Learn more about an event hosted by the Worthington, Ohio Support Group.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting in January.
Learn more about the Indianapolis Support Group meeting.
Learn more about the Indianapolis Support Group meeting.
Learn more about the Indianapolis Support Group meeting.
Learn more about the Indianapolis Support Group meeting.
Join us for our meeting in Washington, D.C., U.S.
Join us for our meeting in Washington, D.C., U.S.
Join us for the Northern California Support Group Meeting!
Join us for the Northern California Support Group Meeting!
Join us for the Northern California Support Group Meeting!
Join us for the Northern California Support Group Meeting!
Join us for our quarterly meeting in Worthington, OH, U.S.
Join the Rochester Support Group for its Finger Lakes Support Group Meeting in December.
Join us for our next support group meeting in Washington!
Join the Dallas Myotonic Dystrophy Support Group for its Support Group Meeting
The 11th meeting of the International Myotonic Dystrophy Consortium (IDMC-11) will be held in San Francisco, CA, from September 5-9, 2017.
Mark your calendars! The 2017 Myotonic Annual Conference takes place Friday, September 8, 2017, through Saturday, September 9, 2017, in San Francisco, C.A.
During the webinar, Dr. Anne Broderick and Dr. Laurie Gutmann will discuss case studies involving palliative care. Additionally, they will discuss when to begin that type of care, as well as common misconceptions about palliative care.
Join us for our first meeting in Indianapolis, U.S.!
Join us for our meeting in Washington, D.C., U.S.!
2016 Annual Inherited Neuromuscular Disorders Family Conference
Myotonic Dystrophy Seminar in Houston -
You're Invited
Join us for our November New Orleans Support Group Meeting!
Join the Rochester Support Group for its 2nd Support Group Meeting!
Join us for our Richmond meeting at our new location!
Join us for our Albuquerque Support Group in December!
Join us for our Albuquerque Support Group in September!
MYOTONIC DYSTROPHY “CONNECT & LEARN”
Join us for our quarterly meeting in Worthington, O.H., U.S.:
Celebrate 20 years of ‘Space: Above And Beyond’ with the cast and crew of the tv series!
Join us for our Summer-Festival Support Group meeting in Switzerland!
Join the Nor Cal Group at the Abilities Expo in November!
Join us for:
Taking Care of Yourself with Aromatherapy/Essential Oils
Webinar: Mid-Year Legislative Update!
Wednesday, June 29, 2016
10 am (PDT) - 11 am (PDT)
Topics for discussion:
This will be the 3rd Annual MD Shenanigans Festival, an adult music festival, featuring seven bands, a live art auction, manliest beard contest, pool tournament,
Join us for our next meeting in Dallas, featuring guest speaker Dr. Sharon Hesterlee!
Sunday, May 22, 2016
2:00 - 4:00 pm (CT)
Join the Portland Group for a BBQ in Clare May's backyard!
Join us for an MDF Family Day adventure at the Rush Ranch Nature Center in Northern California!
Join us for our July meeting in Denver where we will discuss updates on myotonic dystrophy!
Join us for our next meeting in Atlanta:
Breathing and Interventions
The January Meeting of the DC Support Group has been CANCELED.
Join us for a special meeting with Mobility Works in Oakland, CA!
Saturday, January 30, 2016The MDF Caregivers Program consists of a confidential Facebook discussion group as well as a monthly Virtual Caregivers Support Group Meeting.
The MDF Caregivers Program consists of a confidential Facebook discussion group as well as a monthly Virtual Caregivers Support Group Meeting.
Join us for our first Caregivers Virtual Meeting of 2016!
Join us for our next meeting in Denver, featuring special guest, Ann Federspiel!
Join us at the MDF NorCal Meeting Launch in January!
Join us for our next meeting in Virginia! Theme to be announced! Stay tuned!
Snack and Support! Join us December 5th for a Bake and Craft Sale!
November is National Family Caregivers Month!
Call Tuesday, October 13th: Urge the Senate to Prioritize Cures!
In celebration of National Family Caregivers Month, MDF is hosting a webinar on the benefits of meditation for caregivers.
Join us for the launch of our New Hampshire support group!
Saturday, October 3, 2015
1:00 pm - 3:00 pm ET
Huggins Hospital
Medical Arts Building - Conference Room
240 South Main Street
Wolfeboro, NH 03894
Our Albuquerque Support Group is having a meeting in December! Please note the TIME UPDATE!
Join us for the December meeting of our Virtual Caregivers Support Group!
The MDF Caregivers Program consists of a confidential Facebook discussion group as well as a monthly Virtual Caregivers Support Group Meeting.
Join us for the next meeting of our European support group! These meetings will take place in Dornach, Switzerland, close to the German and French borders.
This year, Myotonic is joining hundreds of organizations around the world to participate as a #GivingTuesday partner organization
Please join us for the next meeting of the DC Area Myotonic Dystrophy Support Group!
Join Saint Paul community members and MDF supporters for an evening of music, good food, and plenty of fun!
Darren Hanson is running for DM! He will run 100 miles over the course of the summer as part of a multi-race journey to raise awareness and funds.
Darren Hanson is running for DM! He will run 100 miles over the course of the summer as part of a multi-race journey to raise awareness and funds.
Three cheers for MDF board-member Ona McConnell and her Yale Women’s Field Hockey teammates Maddy Sharp and Jessie Accurso for their awesome performance in the Tough Mudder Challenge.
MDF held its fifth annual conference on November 8-10 in Houston, Texas to a sold-out crowd of 300 community members, caregivers, academic researchers and their program and lab partners, and pharmaceutical company representatives. It was arguably MDF’s most successful conference yet.
Sam's Squad's mission is simple - to raise funds for research focused on finding a cure for myotonic dystrophy, a form of muscular dystrophy affecting Sam Florence and thousands of others.
On the heels of their very successful drive to raise awareness and funds for myotonic dystrophy research, the women's field hockey team at Yale will once again hold a season-long fundraiser for MDF in honor of rising junior goalkeeper Ona McConnell, who has been diagnosed with this disorder.
For more information or to RSVP for a Greater Detroit Area support group meeting, please contact Steve Kiryakoza at steven@kiryakoza.com or 248-894-3838.
Location:
The Northern California neuromuscular support group meets in Oakland and San Jose and is facilitated by Myotonic's Outreach Director, Leslie Krongold.
Sharon Allison and Mollie McKool are among the many DM community members who have grandchildren affected by myotonic dystrophy.
Belly crawling through knee-deep mud followed by hill-running, rope climbing, electric shocks and fire. Sound like a fun day?